Prader-Willi syndrome is a disorder of constant craving for something to eat. Imagine feeling hungry all the time and only being allowed a food input with half as many kilojoules as other people. Imagine romanticising food and not being allowed to eat it..."How would that impact on your life"

People with Prader-Willi syndrome consistently battle with a hungry feeling everywhere they go ... which can result in life-threatening obesity

For this occasion Linda Thornton, the mother of a 25 year old daughter with Prader-Willi syndrome, will visit South Africa in August 2010 to present a series of workshops. Linda is for many years the national Director of the PWS Association in New Zealand and also the vice-president and secretary of the International Prader-Willi Syndrome Organisation (IPWSO).

The workshops will cover three main areas:
• an overview of the syndrome, from the genetics through childhood, teenage and adulthood
• management of the difficult food-related behaviour
• the dietary and health needs of a person with PWS.