Co-designing health education materials

 

Welcome

 Communication is an essential part of humanity. It is what connects us, helps us to understand each other’s thoughts and ideas, share information and build social relationships. The team at the Centre for Augmentative and Alternative Communication (CAAC) in the Faculty of Humanities at the University of Pretoria has been actively debunking the common myth that not being able to talk implies one has nothing to say.
 
We all need to be able to take care of our health. This means being able to get relevant information and educate ourselves about health issues, and being able to access relevant health services. For persons with severe communication disabilities, taking care of their health often proves challenging. Difficulties with understanding health information are experienced by many persons with communication disabilities and the COVID-19 pandemic has exacerbated the situation. One issue that we all have to deal with during this time is the need for easily accessible and reliable health information. For persons with disabilities, navigating this landscape can be exceedingly challenging. Health information is often couched in confusing and inaccessible language and provided in formats and modalities that do not support comprehension and retention. As a result, persons with communication disabilities may be under- or misinformed, with consequent detrimental effects on health outcomes.

The Centre for AAC, Future Africa and UNICEF  have jointly embarked on a project entitled “Co-designing health communication and education materials”. The health education materials were co - developed through extensive consultations and collaborations with various stakeholders including  youth with disabilities, caregivers of children and youth with communication disabilities and professionals who work in the health and education sector.  A variety of resources are available in the links below for down loading and use. Click on a topic and see the resources avaiable which  may include  communication boards, social stories and visual schedules.

 

The project team

  • Prof Vasu Reddy
  • Prof Shakila Dada
  • Dr Kirsty Bastable
  • Dr Alecia Samuels
  • Prof Kerstin Tonsing
  • Ms Adele May
  • Ms Maureen Casey
  • Ms Constance Ntuli (disability advocate)
  • Youth with disabilities
  • Professionals
  • Caregivers
  • Ms Marguertue Steppe (symbol artist)

 

Resources

Communication in healthcare

Healthcare: Communication Boards How to communicate with healthcare  professionals: Social Story
 
    How to use a communication board: Social story    
How to use a communication board: Visual Schedules

Afrikaans

English

English

isiZulu

seSotho sa-lebowa

seTswana

 

Afrikaans

English

isiZulu
 

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

         

 

Communicating about pain

Pain: Communication Boards How to talk about pain: Visual Schedule How to talk about pain: Social Story

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

English

 

Communicating about COVID-19

  What is Coronavirus Child version: Social story   Keeping your mental health up during lockdown: Social Story       Going to the hospital during Covid: Social Story     How to tell if information is real or fake news: Social Story    Washing hands: Visual Schedule  How to make your own hand sanitiser: Social Story Washing hands: Social Story​  Lockdown Boards: Communication Boards

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

Afrikaans

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isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

  

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seTswana

Afrikaans

English

isiNdebele 

isiXhosa

isiZulu

seSotho

seSotho sa-lebowa

seTswana

siSwati tshiVenda

xiTsonga

 

General healthcare

What is CP? Social Story Going to the hospital: Communication Boards  Going to the doctor: Visual Schedule    Having a medical procedure: Social Story   Keeping myself healthy: Social story   Having my blood drawn: Social Story   Healthy Eating: Social story   Having an X-ray: Social Story 

Afrikaans

English

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

English

seSotho sa-lebowa

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

seTswana

Afrikaans

English

isiXhosa

isiZulu

seSotho sa-lebowa

Afrikaans

English

isiZulu

seSotho sa-lebowa

seTswana

 

Links to Publications

Dada, S., May, A., Bastable, K., Samuels, A., Tönsing, K., Wilder, J., ... & Reddy, V. (2022). The involvement matrix as a framework for involving youth with severe communication disabilities in developing health education materials. Health Expectationshttps://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/hex.13445
 
Tönsing, K. M., Dada, S., Bastable, K., & Samuels, A. (2022). Health information and education needs for youth with complex communication needs during the Covid-19 pandemic: rehabilitation professionals’ perspectives. Disability and Rehabilitation, 1-10.
 
 

Co-designing health education materials webinar

Youth Workshop

How do UP researchers help people who cannot speak get medical help and tell doctors what is wrong?

Meet Constance Ntuli - a University of Pretoria researcher with complex communication needs

Activated season 2. Technology as a liberator and equalizer Ms Constance Ntuli and Prof. Shakila Dada

 

Empowering Youth for a Sustainable Development 

www.up.ac.za/media/shared/212/Unicef%20Images/unicef-fa-project.zp248209.pdf

 

 

    

- Author Centre for Augmentative and Alternative Communication

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